Patient Perspective Partners

The Chronic Pain Network currently has patient and caregiver representatives across Canada, including representatives from Indigenous/Aboriginal communities. Patient perspective partners are engaged in Network committees, contributing to research priorities, evaluating projects and helping to guide the Network.
Current Patient Perspective Partners
  • carolynn-bulmer

    Carolynn Bulmer

    Vanderhoof, British Columbia

    Carolynn Bulmer is a group leader for the Vanderhoof Chronic Pain Self Management and Support Group. She participates the advisory committees with Northern Health and community physicians relating to chronic pain.

    Carolynn sits on the Chronic Pain Network's Patient Engagement committee.

  • lynn-cooper

    Lynn Cooper

    Kitchener, Ontario

    Lynn Cooper is the president of the Canadian Pain Coalition. She has spent more than 20 years volunteering with organizations that seek to better understand issues surrounding chronic pain, and furthering research into and management of chronic pain.

    Lynn sits on the Chronic Pain Network's Steering committee.

  • chris-debow

    Chris DeBow

    Halifax, Nova Scotia

    Chris is a partner in an economic and management consulting firm in Halifax. As a volunteer and patient consultant involved in arthritis research for over a decade, Chris has worked with the Canadian Institutes of Health Research, The Arthritis Society,Canadian Arthritis Patient Alliance, Canadian Arthritis Network, and AbbVie Pharmaceutical Research & Development across a broad range of projects. Chris has also served as consumer advisor on a number of arthritis research initiatives.

    Chris is the co-chair of the Clinical Research Network.

  • mario-di-carlo

    Mario Di Carlo

    Montreal, Québec

    Mario Di Carlo was struck by polio at the age of 1 year old; a disease now virtually eradicated. The illness left him with significant physical weaknesses. Over the years, he has used his personal and professional experience to help bring forward causes dear to his heart, such as the Polio Quebec Association, the Association québécoise de la douleur chronique (AQDC), the West Island Mission (WIM) and the Regroupement provincial des comités des usagers (RPCU). Mario was also a member of the board of the McGill University Health Centre (MUHC) and headed the Patients’ Committee of the institution. He collaborated in the Transforming Care at the Bedside (TCaB) project, also at the MUHC. As Master Trainer of the Chronic Disease Self-Management Program (CDSMP) and Chronic Pain Self-Management Program (CPSMP) from Stanford University Mario also holds a Bachelor of Arts in Translation from Concordia University.

    Mario sits on the Chronic Pain Network's Patient Engagement committee.

  • kathleen-eubanks

    Kathleen Eubanks

    Toronto, Ontario

    Kathleen Eubanks is the Co-Founder and President of Ehlers-Danlos Syndrome Canada.

    Kathleen sits on the Chronic Pain Network's Patient Engagement committee.

  • janet-gunderson

    Janet Gunderson

    Glaslyn, Saskatchewan

    Janet Gunderson has been an active volunteer with The Arthritis Society for more 15 years. She is currently on the steering committee for the Canadian Arthritis Patient Alliance and was formerly on The Consumer Advisory Council for the Canadian Arthritis Network. Janet is also active with the Cochrane Muscoloskeletal Group.

    Janet sits on the Chronic Pain Network's Patient Engagement committee.

  • richard-hovey

    Richard Hovey

    Montreal, Québec

    Richard Hovey is an Associate Professor in the Division of Oral Health and Society with the Faculty of Dentistry at the University of McGill. Richard researches suffering, which spans the lived experiences of living with osteoporosis, preventable medical error, type II diabetes, social isolation and chronic pain. He has also conducted interdisciplinary synergetic research workshops for researchers from basic science to public health to learn how to work together effectively through a hermeneutic relational process.

    Richard part of the Chronic Pain Network's Registry Working Group.

  • isabel-jordan

    Isabel Jordan

    Squamish, British Columbia

    Isabel Jordan is the Chair of the Rare Disease Foundation, as well as a founding member. Isabel has volunteered with many non-profit groups and is active with Vancouver Parent 2 Parent Resource Network and a partner in the #ItDoesn'tHavetoHurt campaign.

    Isabel sits on the Chronic Pain Network's Knowledge Translation committee.

  • jacques-laliberte

    Jacques Laliberté

    Saint-Bruno, Québec

    Jacques Laliberté is the founding president of the Association de la douleur chronique (AQDC) in 2004. He is now past president on its Board of Directors.

    Jacques co-chair of the Chronic Pain Network's Executive committee.

  • therese-lane

    Therese Lane

    Toronto, Ontario

    Therese is a patient advocate, volunteer and active member of Action Ontario PNP (peripheral nerve pain).

    Theresa sits on the Chronic Pain Network's Patient Engagement committee.

  • rebecca-lee

    Rebecca Lee

    Ottawa, Ontario

    Rebecca Lee is a spokesperson for The Lions Foundation of Canada Dog Guides, contributor to the chronic illness and disability publication The Mighty and past member of Queen’s University InvisAbilities. She holds a Bachelor of Science (Honours) in Biology from Queen’s University.

    Rebecca sits on the Chronic Pain Network's Patient Engagement committee.

  • curtis-may

    Curtis May

    Richmond, British Columbia

    Curtis is a medical student at the University of British Columbia. He is a research assistant at a chronic pain clinic, CHANGEpain clinic in Vancouver and a volunteer with Pain BC. He plays the saxophone and is a farmer.

    Curtis is part of the Chronic Pain Network's Registry Working Group.

  • carley-ouellette

    Carley Ouellette

    Toronto, Ontario

    Carley Ouellette is a recent nursing graduate from Western University and will be an incoming graduate nursing student at McMaster University. Carley is a research student in the Child Health Evaluative Sciences department at the Hospital for Sick Children (SickKids).

    Carley sits on the Chronic Pain Network's Training & Mentoring committee and is part of the Registry Working Group.

  • lesley-singer

    Lesley Singer

    Montreal, Québec

    Lesley Singer is a physiotherapist, clinical educator and founder of the Pain Science Division within the Canadian Physiotherapist Association. She also has experience with translating knowledge to clinicians. Lesley has been living with chronic neuropathic pain since 2000.

    Lesley sits on the Chronic Pain Network's Knowledge Translation committee and Training & Mentoring committee.

  • karen-smith

    Karen Smith

    Halifax, Nova Scotia

    Karen Smith comes from a background in public relations. She has served on many non-profit boards and is involved in the health sector as a speaker for clinical education. She is a university health mentor at Dalhousie University and makes public presentations focusing on the “stigma and social consequences of pain.” She also sits on the Canadian Pain Society's Scientific committee.

    Karen sits on the Chronic Pain Network's Executive committee.

  • janice-sumpton

    Janice Sumpton

    London, Ontario

    Janice is a pharmacist and interdisciplinary team member of the Pediatric Chronic Pain Program at Children’s Hospital in London. She is a Canadian Pain Coalition board member and Co-Chair of the Patient/Public Working Group for Canadian Opioid use in Chronic Non-Cancer Pain.

    Janice sits on the Chronic Pain Network's Patient Oriented Research Committee.

  • marc-white

    Marc White

    Vancouver, British Columbia

    Marc White is co-founder, CEO and President of the Canadian Institute for the Relief of Pain and Disability. He is also a clinical assistant professor with the Department of Family Practice at the University of British Columbia.

    Marc sits on the Chronic Pain Network's Patient Oriented Research committee and is part of the Clinical Research Network.

  • linda-wilhelm

    Linda Wilhelm

    Kings County, New Brunswick

    Linda Wilhelm is the president of the Canadian Arthritis Patient Alliance and was previously with the Canadian Arthritis Network's Consumer Advisory Council. She has also a collaborated on a number of Canadian Institutes of Health Research Strategy for Patient Oriented Research grants.

    Linda sits on the Chronic Pain Network's Steering committee and Patient Engagement committee.

Past Patient Perspective Partners
  • billie-jo-bogden

    Billie Jo Bogden

    Ottawa, Ontario

    Billie Jo has a background in policy, communications and intergovernmental affairs. She is currently working on a collective action project to address gaps in education and awareness both within the health care sector and the community. Advocating for patient rights, she supports a more active participation in the development of patient treatment plans and the integration of care for patients living with chronic pain.

    Billie Jo is a past Co-Chair of the Chronic Pain Network's Patient Oriented Research Committee.

  • mary-brachaniec

    Mary Brachaniec

    Moncton, New Brunswick

    Mary Brachaniec is a retired physiotherapist with experience in several national and provincial Arthritis Society initiatives. She also served on the CIHR Institute for Musculoskeletal Health and Arthritis Knowledge Exchange Task Force and the Cochrane Consumer Network for several years.

    Mary is the past Co-Chair of the Chronic Pain Network's Knowledge Translation committee.