CANDADIAN SURVEILLANCE STUDY OF COMPLEX REGIONAL PAIN SYNDROME IN CHILDREN AND YOUTH

Leader(s)Dr. Krista Baerg (PI), Susan Tupper (co-PI) and Dr. Allen Finley (co-PI)
Institution(s): University of Saskatchewan/Saskatoon Health RegionDalhousie University
Other Members: Canadian Pediatric Pain Clinics



Why was the study done?
Complex regional pain syndrome (CRPS) is a devastating chronic pain condition that is underrecognized in children and youth. Few interventions for CRPS have been formally evaluated in the pediatric population and variability in the diagnosis and management of CRPS exists. Improved knowledge of the incidence and presentation of CRPS in Canada can help promote early detection and diagnosis.

How was the study done?This study used the established methodology of the Canadian Paediatric Surveillance Program (CPSP). During the 2-year surveillance period, participating pediatricians and Canadian pediatric pain clinics reported any patient presenting between the ages of 2 and 18 years (up to the 18th birthday) with a new diagnosis of CRPS and completed a detailed case questionnaire. The complete protocol can be accessed at www.cpsp.cps.ca/surveillance 

What were the study results?
A manuscript of findings is currently under preparation. Preliminary findings are presented in the 2019 CPSP Results. For more information, visit: https://www.cpsp.cps.ca/uploads/publications/CPSPResults2019.pdf



Recent Updates:
The study tracked data from approximately 2,800 Canadian pediatricians and pediatric subspecialists on CRPS incidence, clinical presentations, and times to diagnosis. Results will be used to promote early recognition and treatment to benefit patient recovery.
Last updated: January 2021


Selected Publications:
In progress