Hospital for Sick Children (site lead), Centre for Global eHealth Innovation (University Health Network), Alberta Children’s Hospital, Mount Sinai Hospital, IWK Health Centre, Queen Elizabeth II Health Sciences Centre, Alberta Health Services, Stollery Children’s Hospital
Lalloo, C.; Campbell, F.; Gordon, A.; Chorney, J.; Clark, J.; Simmonds, M.; Rashiq, S.; Jibb, L.; Dick, B.; Forgeron, P.; Ingelmo, P.; Montgomery, L.; Ruskin, D.; Tupper, S.; Victor, C.; Ware, M.; Palermo, T.
Why was the study done?
Chronic pain is common in young people aged 15-25 years. This pain can negatively impact all aspects of life. However, the developmental periods of adolescence and emerging adulthood also represent a critical window of opportunity to develop positive self-management behaviours and prevent future pain-related disability.
How was the study done?
iCanCope is a smartphone and web-based program designed to support young people with chronic pain. iCanCope was developed with extensive input from young people and healthcare providers. First, interviews and focus groups were completed to better understand the needs of this group. Second, a series of iCanCope design sessions were completed with patient partners to develop the final program. iCanCope features include: (i) symptom tracking and trends, (ii) goal-setting, (iii) coping skills toolbox, (iv) social community forum, and (v) chronic pain education.
What were the study results?
iCanCope is currently being rigorously evaluated through a randomized controlled trial supported by the CPN SPOR. This study will determine how the iCanCope program impacts the lives and self-management behaviours of young people aged 15-25 with chronic pain. Study recruitment is ongoing at 10 specialized chronic pain clinics across Canada. To date, 229 participants out of our target enrolment of 302 participants have been enrolled in our study. Preliminary analysis demonstrates that iCanCope can be deployed to participants with high fidelity (92% success) and this group demonstrates moderate-to-high program adherence over the 55-day study period. Post-study interviews are being conducted with a subset of participants to investigate program impact and satisfaction. Following completion of the trial, iCanCope will be made freely available to the public. iCanCope will increase the accessibility of pain self-management care for young people with chronic pain across Canada.
The iCanCope with Pain program is being adapted and tested in five countries, including Canada, the United States of America, Ireland, Australia and Norway.