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CPN Governance Structure

The Chronic Pain Network is composed of seven committees, a National Coordinating
Centre, with a registry working group, clinical research network and provincial SPOR
SUPPORT Units acting as network resources. Each committee has at least two People
Living with Pain or their caregiver representatives, including a Person Living with Pain as
committee co-chair.

Information Box Group

Executive Committee

Co-Chairs: Norm Buckley & Jacques Laliberté*

Committee Members: Manon Choinière, Nader Ghasemlou, Ian Gilron, Maria Hudspith, Margot Latimer, Cyril Schneider, Karen Smith*, Bonnie Stevens, Kim Begley (Ex-Officio), Megan Groves (Ex-Officio), Donna Marfisi (Ex-Officio)

Patient Oriented Research Committee

Co-Chairs: Cyril Schneider & Marc White*

Committee Members: Jason Busse, Louis Gendron, Ian Gilron, Tiffany Rice, Barry Sessle, Joy MacDermid, Janice Sumpton*, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To ensure that research projects funded by the Chronic Pain Network align with the Network’s strategy.

Patient Engagement Committee

Co-Chairs: Maria Hudspith, Therese Lane* & Delane Linkiewich*

Committee Members: Katie Birnie, Jennifer Daly-Cyr*, Mario Di Carlo*, Kathleen Eubanks*, Janet Gunderson*, Carolynn Bulmer*, Linda Wilhelm*, Rebecca Lee*, Dawn Richards, Patricia Poulin, Sandy Smeenk, Jennifer Stinson, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To ensure meaningful engagement of diverse patients with chronic pain in the Governance and Committee structures and projects of the Network. To increase the capacity of: (a) network members to meaningfully engage patients in their research projects and (b) patients to be engaged in the network. To evaluate and report on the outcomes of patient engagement in Network activities.

Knowledge Translation Committee

Co-Chairs: Alfonso Iorio & Lesley Singer*

Committee Members: Karine April-Toupin, Katie Birnie, Mary Brachaniec, Christine Chambers, Jennifer Cyr-Daly, Jennifer Stinson, Ian Gilron, John Lavis, Nader Ghasemlou, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Megan Groves (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To ensure dissemination of the output of the Network through multifaceted strategies to multiple audiences including health care professionals, researchers, policy makers, and the public. It will also facilitate contribution to original KT research.

Training & Mentoring Committee

Co-Chairs: Mike McGillion & Carley Ouellette*

Committee Members: Jeff Mogil, Renata Musa, Judy Watt-Watson, Lesley Singer*, Renée El-Gabalawy, Christine Chambers, Manon Choinière, Alfonso Iorio, Margot Latimer, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio),Donna Marfisi (Ex-Officio)

Mandate: To provide high quality innovative patient-oriented research training within the Network, and to create and foster linkages between trainees and mentors, and between clinicians, consumers and researchers. These linkages will enhance interdisciplinary research collaboration, innovation and trainee success, and they will also provide diverse and uniquepartnerships across settings, networks and stakeholders.

Indigenous Health Research Advisory Committee

Co-Chairs: Margot Latimer, Sharon Rudderham & John .R. Sylliboy (Co-Chair Delegate)

Committee Members: Maria Hudspith, Elder Margaret Lavallee, Tuma Young, Kristy Barnaby, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To ensure to generate Indigenous research knowledge that will be meaningful for the Network and will endeavor to share through diverse strategies for multiple audiences including  communities, academics, health professionals, public and policy makers.

Pediactric Registry Sub-Committee

Co-Chairs: Jennifer Stinson & Carley Ouellette*

Committee Members: Krista Baerg, Kahina Bensaadi, Stephanie Blackman, Fiona Campbell, Manon Choinière, Bruce Dick, Alex Falcigno, Allen Finley, Lauren Harris, Pablo Ingelmo, Audree Janelle-Montcalm, Madison Kennedy, Melanie Noel, Tim Oberlander, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio), Amos Hundert (Ex-Officio)

Extended Core Members: Ardith Baerveldt, Susan Carter, Emily Copps, Jennifer Crotogino, Marie-Joelle Doré-Bergeron, Sheri Findlay, Megan Greenough, Abi Kandasamy, Meghan McMurty, Golda Milo-Manson

Clinical Research Network

Co-Chairs: Ian Gilron & Chris DeBow*

Committee Members: Jennifer Anthonypillai, Krista Baerg, Amel Bagdhadli, Jillian Banfield, Helene Beaudry, Etienne Bisson, Stephanie Blackman, Fiona Campbell, Bruce Dick, Jessie Dhillon, Scott Duggan, Renée El-Gabalawy, Allen Finley, Lauren Harris, Howard Intrater, Keith Jarvi, Madison Kennedy, James Khan, Susan Lau, Mary Lynch, Aaron McInnes, Casey McMahon, Maliha Muneer, Melanie Noel, Gabrielle Pagé, Anne Marie Pinard, Patricia Poulin, Saifee Rashiq, Nivez Rasic, Danielle Rice, Tiffany Rice, Rachel Roy, Yoram Shir, Jennifer Stinson, Sylvie Toupin, Elodie Traverse, Michelle Verrier, Marc White*, Ramesh Zacharias, Norm  Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To carry out and direct all clinical research and clinical trial activities of the Chronic Pain Network.

Registry Working Group

Co-Chairs: Manon Choinière & Richard Hovey*

Committee Members: Kahina Bensaadi, Ian Gilron, Audree Janelle-Montcalm, Curtis May*, Jennifer Stinson, Mark Ware, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Adult Registry Sub-Committee

Co-Chairs: Manon Choinière & Richard Hovey*

Committee Members: Sara Ahmed, Nicolas Beaudet, Kahina Bensaadi, Ian Gilron, Audree Janelle-Montcalm, Irina Kudrina, Curtis May*, Dwight Moulin, Richard Nahas, Dave Walton, Mark Ware, Owen Williamson, Ramesh Zacharias, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

IT Registery Sub-Committee

Co-Chairs: Nicolas Beaudet & Mark White*

Committee Members: Kahina Bensaadi, Joseph Caffazo, Manon Choinière, Audree Janelle-Montcalm, Jennifer Stinson, Frank Sullivan, Norm Buckley (Ex-Officio), Kim Begley (Ex-Officio), Donna Marfisi (Ex-Officio)

Mandate: To put in place a Canadian registry of registries of chronic pain patients – i.e. a platform for harnessing existing patient registries and thereby allow data sharing for conducting research on chronic pain.

To support the development of new patient registry initiatives using a cohesive national approach by promoting the collection of a standard set of outcome measures amongst registries and the use of servers/platforms that can communicate.

To implement across Canada a common needs-based minimal set of quality indicators/ outcome measures in practice settings across the health care continuum that will serve clinical, administrative, and research purposes, and thereby constitute the core of a national registry of adult and pediatric patients suffering from chronic pain that will be used to collect population health level data and conduct large research projects aimed at improving the management of chronic pain for all Canadians.

*denotes a Person Living with Pain